H.E.A.R.D. Support Group  

Welcome to the
Hemangioendothelioma (HE),
Epithelioid Hemangioendothelioma (EHE),
And Related vascular Disorders (H.E.A.R.D.)
Support Group Website.
     


This site is dedicated to the memory of our dear son, Danny Pollak,
who lost his life to this rare and baffling cancer after a 10 year struggle.
He fought his battle with dignity and courage,
he lived every day of his life to the fullest,
and achieved so much.
He will live forever in our hearts and our memories.
Cynthia and Peter Pollak, September 2008


PARTNERING WITH C.R.A.V.A.T.
TO FIND A CURE FOR VASCULAR TUMORS.
 
Click her for CRAVAT Foundation
Earlier this year, CRAVAT made a substantial contribution to fund a research proposal
from the laboratory of Dr Rubin. But more research needs to be done.
(Check below)

PLEASE NOTE - THIS H.E.A.R.D. SITE IS OUT OF DATE,
  but I believe the info herein is important to follow the history of  EHE.

There is a good forum at CRAVAT to share information.
Another good resource is
the Facebook entry under Epithelioid Hemangioendothelioma (EHE) Cancer.

TOP NEWS:

 Dr Rubin is working on the first targeted therapy for EHE! Please check here

Finally, if you need to speak to someone, please email me,
info@HEARDsupport.org and I will redirect your message accordingly.
Regards and best wishes for your health,                 Cynthia Pollak Dec 2013

NOTE - IF YOUR EMAIL IS NOT ANSWERED WITHIN A WEEK - PLEASE EMAIL AGAIN.
(There is a bit of redirecting happening behind the scenes, and we really do want to ensure we make contact)

When my son Danny was first diagnosed in 1999, I was told there was very little research into this rare cancer.
I have set out to find out as much as I can, and to inform as many people as possible. Over the years, I have been contacted by many people,
both newly diagnosed individuals and health professionals, who had never heard of this disease before and did not know where to turn.
I am happy to have been able to help.


Thank to Michael Tsafas for his support.  Michael’s wife Connie Chu-Tsafas succumbed to EHE in 2006. May her memory be a blessing to Michael and his family.

Note - the information and opinions expressed herein are those of the author, who has no medical training. Refer to Disclaimer.





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